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My Kidney Crisis - Good News Update

#1

Zappit

Zappit

Been going to a few doctors all week, and found out I've got some sort of kidney disease. Got a biopsy Monday. Not looking forward to it, let me tell ya.

Happened on it completely accidentally, too. I tried a blood pressure machine for kicks, found out it was way too high, and one thing led to another. Kidneys got a problem, but I don't know how bad yet. Wish me luck.


#2



Philosopher B.

Dude, good luck.


#3

Dave

Dave

Good luck, man. Take care o' yourself.


#4

Hylian

Hylian

Hope you get to feeling better :(


#5

Espy

Espy

Damn dude, I'm sorry to hear that :(
You take care of yourself and keep us updated/let us know if you need anything.


#6

Zappit

Zappit

I've been feeling good, and my numbers have at least been stable, so this might not be too bad. There is damage to the kidneys, though - but it might not be too bad. Fingers crossed.


#7

bhamv3

bhamv3

G'luck with everything, man. Keep us posted.

Maybe we can all chip in and buy you a new kidney!


#8

Espy

Espy

bhamv3 said:
G'luck with everything, man. Keep us posted.

Maybe we can all chip in and buy you a new kidney!
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Pff, we can just harvest one from a lesser liked forum member!


#9

Cheesy1

Cheesy1

:hide:


#10

SpecialKO

SpecialKO

Good luck, man!


#11

Ravenpoe

Ravenpoe

Espy said:
Pff, we can just harvest one from a lesser liked forum member!
Click to expand...
I'm sure Shego has a few in the freezer.


#12

strawman

strawman

Good luck, dude. Kidney diseases are less than fun - it sounds like you cought it earlier than most people would have though.
Cheesy1 said:
:hide:
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^ ^ ^ ^ ^
| | | | |

THIS


#13

Zappit

Zappit

Had the biopsy today - my charts had me down for a TRANSPLANT. Bad day.


#14

strawman

strawman

Aw man! I'm so sorry!


#15

Cheesy1

Cheesy1

Eek! Dude, keep us updated! We want to see you get through this!


#16

CrimsonSoul

CrimsonSoul

Zappit said:
Had the biopsy today - my charts had me down for a TRANSPLANT. Bad day.
Click to expand...
Good catch lol


#17

Zappit

Zappit

My nurse mangled my arm when drawing blood - if you can't fill a single vial in about 2 solid minutes, you'd think you'd try again, right?

Then the chart mix-up. My doc was great. Procedure was done in ten minutes, but I did feel the second "punch" a bit when they drew one of the samples.

Lunch after was good, though. Bed was nice. Day SUCKED HARD.


#18

Zappit

Zappit

Got my preliminary results - I've in the bad end of the IGA spectrum. It's treatable, but we're moving quickly - dialysis and a transplant is a real possibility. Damn. My doc said he was confident we could get this in remission - it usually responds. Just kinda floored right now.

Maybe I shoulda taken that kidney they were gonna give me yesterday, huh? :(


#19

doomdragon6

doomdragon6

What is "the IGA spectrum"?


#20

North_Ranger

North_Ranger

Awww man, Zappit, that sucks.

Here's hoping you'll pull through alright.


#21

SpecialKO

SpecialKO

Good luck, dude! You'll pull through!


#22

Zappit

Zappit

Found out I need to take IVs of my steroid three times a month - three days in a row - did the first one today. Not too bad. Nowhere near as bad the biopsy. Took about 45 minutes.


#23

Cajungal

Cajungal

I'm glad you found out what was going on. That at least can be comforting. Hope you're feeling well.


#24

sixpackshaker

sixpackshaker

wow Zappit, hope you respond to these treatments.


#25

IronBrig4

IronBrig4

I'm sorry to hear about that and wish you well.


#26

Zappit

Zappit

I am feeling good. I was apparently born with this, but it only really fired up recently - it's from an autoimmune condition that affects only the kidneys. I was oblivious for 27 years about this, so I don't really feel any different or sick, if you know what I mean. But, I'm told these treatments work very often, so I'm pretty confident, too. Got another steroid IV drip today and tomorrow. Was (comically) a little wired from the drip last night, but that's about as bad as it's been with that. Biopsy was the worst part so far. DO NOT WANT AGAIN.


#27

Dave

Dave

Biopsies suck. I've never had one but I've seen them done and it's not anything I'd ever want to experience. You are the man and I'm glad you're okay.


#28

Zappit

Zappit

Interesting quirk - the IV I'm taking is giving me aggressive, relentless hiccups. Nothing dangerous, but it's a curiosity.

And thanks for the support, guys. I haven't said it yet, but it means a lot.


#29

Zappit

Zappit

Update - got some numbers from the biopsy - about 67% scarring on my filters, and 25% atrophy. Not game over, but not a fun fight ahead. Crossing my fingers that the blood and urine tests come back with some good news tomorrow.


#30

Ravenpoe

Ravenpoe

Zappit said:
Update - got some numbers from the biopsy - about 67% scarring on my filters, and 25% atrophy. Not game over, but not a fun fight ahead. Crossing my fingers that the blood and urine tests come back with some good news tomorrow.
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I just want you to know, man, that if it comes down to it, if you need a new kidney, then, well... you can't have mine.

But, knowing that, it will narrow down the search, and put you one step closer. In the mean time, I'll be thinking about ya.


#31

CrimsonSoul

CrimsonSoul

Ravenpoe said:
I just want you to know, man, that if it comes down to it, if you need a new kidney, then, well... you can't have mine.

But, knowing that, it will narrow down the search, and put you one step closer. In the mean time, I'll be thinking about ya.
Click to expand...
I second that. but if you ever need bone marrow I'm on the donor list!


#32

Espy

Espy

Thanks for the update man, keep us in the loop. You are in our prayers and thoughts.


#33

North_Ranger

North_Ranger

You'll make it, Zapster ol' boy. We're rooting for you.


#34

Zappit

Zappit

Some GOOD NEWS today. Improvement in some of the most important numbers - seems that, at least right now, the treatment is having some effect.


#35

Dave

Dave

That IS good news!


#36

Zappit

Zappit

Not out of the woods, yet, but it's a good sign.


#37

ThatNickGuy

ThatNickGuy

Zappit said:
Interesting quirk - the IV I'm taking is giving me aggressive, relentless hiccups. Nothing dangerous, but it's a curiosity..
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Could be worse.


Added at: 16:09
But seriously man, we're all prayin' for ya. I thik Shego's sacrificing a couple of bulls in your name.


#38

Allen who is Quiet

Allen who is Quiet

ThatNickGuy said:
Could be worse.
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ಠ_ಠ


#39

ThatNickGuy

ThatNickGuy

I...no, no no. That's not what I meant. Then again, glass-shattering hiccups would be kind of awesome.


#40



Chibibar

I'm on the organ donor's list (but only if I get killed) please don't kill me.

I am glad treatment is getting better, but look at the bright side, you should be glad that you DID mess around with those high blood pressure machine and discover this early enough to still be treatable.

Curiosity, is it both? or just one? (I am not familiar on the disorder)


#41

IronBrig4

IronBrig4

This is good news! Let there be joy and celebration throughout the realm!



#42

North_Ranger

North_Ranger

Yay!


#43

Zappit

Zappit

Ugh. Just got home after four days in the hospital. Got a badass flu, got severely dehydrated, and it put my kidneys in trouble to the point that dialysis and transplant seemed inevitable. Went into the hospital the day after Christmas. Recovered, got back to my baseline numbers, still feel like shit and fighting a minor infection in my face, but doing much better right now. But man, I just out and out lost most of a week from this.


#44

doomdragon6

doomdragon6

That sounds no good. :(


#45

Zappit

Zappit

It sucked pretty hard. They actually ran a fairly rare test on my salivary gland - threading a camera up the duct - to check for blockages before ruling that an infection.


#46

sixpackshaker

sixpackshaker

ow.


#47

Zappit

Zappit

sixpackshaker said:
ow.
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You know what? - It wasn't as bad as some of the other stuff I've had done. It was just a really, really weird sensation, especially when they pumped in dye. It's like salivating in reverse, with some minor pain.


#48

Zappit

Zappit

So...the latest test results came in - and it's looking like I'm heading towards remission. Surprising, particularly after my hospital stint. But really, really welcome news. Little to no blood or protein in the urine - it's suggesting that things are going well, and I might be able to start getting off the immuno-suppresants fairly soon. Fingers crossed.


#49

Gared

Gared

Good luck!


#50

doomdragon6

doomdragon6

Excellent news!

Also, I just ready the salivation thing. JESUS.


#51

ThatNickGuy

ThatNickGuy



#52

Zappit

Zappit

doomdragon6 said:
Excellent news!

Also, I just ready the salivation thing. JESUS.
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Heh. Like I said, sounded worse than it actually was.


#53

Siska

Siska

So are they putting you on some kind of diet for the rest of your life, or is it managed with pills?


#54

Zappit

Zappit

Siska said:
So are they putting you on some kind of diet for the rest of your life, or is it managed with pills?
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Little of both. Mostly for high blood pressure. Keeping that down protects the kidneys. I've got another pill for the kidneys themselves.


#55

Ravenpoe

Ravenpoe

Zappit said:
Little of both. Mostly for high blood pressure. Keeping that down protects the kidneys. I've got another pill for the kidneys themselves.
Click to expand...
And a special diet of kidney beans!

...

I'll just go.


#56

Zappit

Zappit

Eh - had some infusions done this week - always knocks me on my ass pretty hard. No energy to draw, so I'm way off draw a day, and I'm not going to make it this Friday for Pixel's update. I had a huge buffer, but these health setbacks have absolutely depleted it. :(


#57

Zappit

Zappit

Some good news - the latest tests came back (half of them, at least) and my numbers were the best they've been since I started treatment - getting very close to normal, healthy readings. Waiting on the blood tests, but things might be looking kinda...good.


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