Ms. <REDACTED>,
I reached out to <REDACTED> via LinkedIn yesterday regarding a negative patient experience and he gave me your contact info as the Patient Feedback Coordinator for <REDACTED>. I'd like to share with you some concerns my wife and I had regarding our recent new patient intake appointment(s) at the <REDACTED> clinic location. That I was forced to use my personal LinkedIn account to locate contact info for anyone in<REDACTED> administration in order to locate a feedback address is concerning in and of itself.
My wife and I both had appointments on Friday, October 6, 2017. We schedule appointments back to back, and attend each other's appointments - I go to hers because her memory is tenuous at times, and she comes to mine because I have anxiety issues and tend to undersell my own medical conditions. These were new patient intake appointments for <REDACTED>, as we have recently moved to the area from Puyallup, WA. Since we bought a house this time (this becomes more relevant later, unfortunately) and have no intention of leaving anytime soon, we intended this appointment to be the first of many.
Without going into our full medical histories, the main reasons for our visit were to establish care, transfer our prescriptions from Walgreen's to the local drug store (Sempert's), and discuss a recent ER visit of mine from a severe panic attack. We didn't even get to the ER visit. Upon seeing my wife, who is overweight, and reading the vitals that her MA had taken, Nurse <REDACTED> immediately launched into a chorus of "you're too fat," followed by "you need to lose 10 pounds a month," and sneers of "do you even know how much you eat each day?" All of this was stated in a condescending tone of voice, talking down to my wife and belittling her because of her weight.
I can assure you my wife does know exactly what and how much she eats each day. You see, we're both diabetic, but in remission, so we measure our food every meal. Had Nurse <REDACTED> bothered to ask what our diet was, or even ask what our most recent A1C levels were (my wife's came in at 6.3 and mine at 6.5 last quarter), she could have saved herself a lot of the effort that she put into antagonizing my wife. She also demanded that my wife see yet another dietician and that she keep a food journal - for herself only, no one else will see this journal. What's the point then? If we can't show Nurse <REDACTED> what we eat on a daily basis, or even tell her what sort of diet we stick to (it's a modified version of the American Diabetes Association's recommended diet with added fiber in the evenings to carry us through until the following morning without going hypoglycemic in the middle of the night), how are we supposed to work with her to improve our overall health?
I was diagnosed with type 2 diabetes 6 years ago. The disease is rampant in my father's side of the family. I've personally watched several family members go blind, lose limbs, and die from this disease and when I was diagnosed I vowed not to go down the same path. I've had some bumps along the way, but over the last two and a half years I've lost 90 pounds, given up nicotine, and dramatically changed my diet. Nurse <REDACTED> wasn't even interested in hearing any of that - though as soon as my wife mentioned that she'd lost about 35 pounds before putting 10 back on during a high-stress period of our life, all talk of dieticians ceased and Nurse <REDACTED>s' tone of voice changed completely; until we got to my intake.
I've been struggling with anxiety - diagnosed as General Panic Disorder by a previous doctor - for which I've been seeing a therapist, taking Zoloft, and practicing mindfulness meditation. Sometimes I need a fast acting anxiolytic that will stop a panic attack without turning me into a zombie (like Valium does), and - at the recommendation of a previous doctor - I use CBD for that purpose. That being the case, I listed cannabis as a medication that I take. This meant, unfortunately, that Nurse <REDACTED> - in addition to demanding to know why I suffer from anxiety, and if I've even "ever bothered" to try to figure out why - spent 20 minutes telling me how much of a horrible federal felon I am and how "the state may say cannabis is OK, but it's a felony and you're a felon, and you need to stop this dangerous drug use." As soon as I had a chance to get a word in edgewise and tell her it was high CBD strains for anxiety she had no problem with its use.
In my case, Nurse <REDACTED>'s tone of voice never became professional until after spotting some flea bites on my lower legs. When we explained that the flea infestation came with the house we'd just purchased she actually said "came with the house?," and went back to treating us like human beings worthy of respect and basic human dignity.
She then went on to question why I take a potassium supplement (lower leg cramps), and looked at me like I had three heads when I said I can't eat bananas (they're the worst fruit you can eat when you're diabetic), or potatoes (the Glycemic Index and Glycemic Load for russet potatoes is the same or higher than those of Glucose) or drink Gatorade (she was honestly confused as to why a diabetic can't drink a sugary sports drink) and needed a potassium supplement. I don't necessarily expect one nurse to be completely up to date on the most recent ADA recommendations, but she should at least know that Gatorade and potatoes are bad for diabetics.
Still, the worst treatment we received was that Nurse <REDACTED> absolutely flat out refused to write refill prescriptions for either of us. Even after being told that I would run out of my psych meds (and that my wife would run out of her blood pressure meds) before the weekend was over, she flat out refused to write us new ones and instead told us that what we had to do was go to Sempert's and ask them to contact Walgreen's to transfer our prescriptions over, and then tell them to change the doctor on record for those prescriptions to herself, and then she'd refill them when Sempert's requested refills. All of this was done the Friday afternoon before a holiday weekend (Columbus Day), when the pharmacy is closed on Sundays to begin with. This meant that, since the pharmacy was adamant that this is NOT the way transfers are done, both of us went without our meds being refilled for the weekend. And, while my wife was able to find some of hers from a previous prescription, I went without mine because I didn't have any previous prescriptions of this strength of the drug.
This was the worst doctor's appointment I've ever had. I was made to feel like a federal felon for using a legal medical substance in a medicinal capacity. My wife was talked down to because of her weight. We were both condescended to until we mentioned that we recently purchased a house. Our provider refused to refill our daily maintenance medications. She then went on to denigrate the entire community - sneering and asking "eww, why would you choose to move here?" - and, when we asked why we hadn't been provided with the necessary forms to have our medical records transferred from our last provider, rolled her eyes and told us "these people (voice dripping with contempt) around here never move, their records are already in our system."
This is an economically distressed region, with an aging populace who will continue to need competent and caring medical staff. The care my wife and I received causes me a great deal of concern about the standard of care that our community is receiving and will continue to receive in the future. The fact that I could find absolutely no way to communicate these issues to someone outside of the individual clinic levels without taking to social media (something I'm sure the 80+ year old woman in the waiting room with us talking about how she doesn't own a computer or even a television wouldn't have been able to do) is appalling. If you have to own your own home in order to be treated with respect, how many people in such a depressed area will never be treated with respect? More importantly, how many people are going to receive bad medical advice from a provider who doesn't ask any (non-accusatory) questions during an intake appointment, or who is sadly undereducated about one of the biggest health concerns in the country right now?
So, in conclusion, I have a couple of questions for you. First, is the "care" that my wife and I received the standard of care to which <REDACTED> strives? Second, assuming that your answer to the first question is "no, of course not," what can we do to help <REDACTED> improve the standard of care in our community? I don't intend to move any time soon. I also don't intend to drive to Medford or Eugene to see a non-<REDACTED> physician. I need to know that I can trust my local health care teams to treat me with dignity, respect, and up-to-date, appropriate medical science.
Kind Regards,
<REDACTED>