I started my new treatment today which is a low dose of a chemotherapy drug. I wont't be on a high enough dose for it to be considered chemo but it's still freaking me out and there are a lot of gross/scary side effects.
I needed to have injection training before I was allowed to do it at home by myself. I've done auto-injector pens, put these injections are fully manual. The nurses at my specialist's office were meant to train me but called and that they couldn't possibly do that for a month and left me on my own to set up training. Yay?
I was shocked that I was able to get that set up for today. I called the pharmacy and placed an order for all my supplies. I got all ready to go to my appointment and got in the car with my daughter. I was pretty nervous about all this. We had snow all week and our plow guy never came. At all this week. I got out of the garage ok but the driveway was very slippery and I ended up slipping and sliding all over my driveway and one of my back tires fell off our driveway into the ditch. I was done!
I contacted friends and family until I got ahold of someone who could pick us up and take us to my appointment. They offered to wait but
@HCGLNS was returning from his out of town work trip soon, so he was going to pick us up.
In the middle of me giving myself my first injection as part of my training with the doctor helping, my daughter's cell phone goes off. No hobo pick up. He's stuck behind a huge accident on the highway and still a long way out of town. And because of all our drama, we were over an hour late to my appointment and my son needs to be picked up at day care in less than half an hour.
I want to cry. Instead, I make some more calls and reach my uncle who lives nearby and he picks us up, we all go get my son and he drops us off on the road at the top of our driveway and my daughter takes my arm and helps me down. Once I'm finally inside, I'm almost in tears and jumping every time I hear a weird sound outside thinking that it's my car falling over into the ditch.
We hear a knock at the door and it was a friend and her husband coming to help. She had been filling in for my son's regular babysitter and knew I couldn't do anything about the car myself. I have no idea how but they used their vehicle to pull mine out to the street! I thanked her profusely and gave her booze.
I'm sitting here not able to sleep because I'm really super barfy from today's treatment and feeling a bit sorry for myself that my AS has gotten so advanced that it's even needed. I'm also pretty sore from climbing out of my car to get out of it after I got part of it stuck in the ditch and all the other cross country walking and climbing today.
I really am very lucky though to have so many awesome people willing to help out and some without being asked. Today could have been a total disaster without them. I wanted to give up a few times, but I need to start this treatment and I need to get better so I promised myself I could freak later if I came up with options then. So, I think I'll allow myself my freak out now
